When faced with a loved one suffering from a disease without a cure, some individuals are driven to take action in any way possible to seek a solution. One such inspiring story is that of ‘Eyes On The Future’, initially launched in 2017 as ‘Through Vicky’s Eyes’. This fundraising and advocacy campaign aimed to support finding a treatment for Vicky and other children like her who are affected by rare eye diseases, particularly the gene RDH12. In 2022, ‘Eyes On The Future’ made its official mark as a charity in the U.K., with a mission to raise funds for rare disease research, raise awareness, and unite a global community.
Stepping into the realm of rare diseases, the founders of Eyes On The Future, who came from the commercial world, brought a unique perspective by applying a business mindset and managerial expertise to the field of rare disease research. As the CEO and trustee of Eyes on the Future, Cerolini leads a global RDH12 Alliance, collaborating with sister non-profits in the U.S. and Belgium. In a world where 95% of rare diseases lack treatment options, the alliance’s mission gains significance as they strive to make a real difference in the lives of those affected.
For any charitable endeavor to succeed, strategic planning and competent leadership are essential. ‘Eyes On The Future’ is fortunate to have a dedicated team of trustees who volunteer their time and expertise to drive the organization forward. An experienced Chair plays a crucial role in guiding the organization and articulating the scientific value proposition needed for a sustainable business model. As the charity evolves, developing a robust organizational design plan and understanding the competitive and regulatory landscape are vital steps to ensure continued growth and impact.
The success of ‘Eyes On The Future’ hinges on several key investment factors, including addressing critical problems, identifying market opportunities, and demonstrating a well-thought-out strategy for sustainable growth. As the charity expands its reach and impact, delegating responsibilities and building a strong team will be essential for scaling operations and maximizing effectiveness. By fostering collaboration and innovation, Eyes On The Future is paving the way for breakthroughs in rare disease research and bringing hope to countless individuals and families worldwide.
In a world where the fight against rare diseases is ongoing, ‘Eyes On The Future’ stands out as a beacon of hope and progress, driven by a mission to make a tangible difference in the lives of those affected by rare eye diseases. Through collaboration, dedication, and strategic foresight, this charity is not only raising funds but also raising awareness and building a global community united in the pursuit of a brighter, healthier future for all.